Research Library
The Carer Knowledge Exchange Research Library is a collection of recent Australian publications and other resources that contain reliable research about family and friend carers. It is constantly being added to, and you can suggest research to be included here.
There are two main ways to use the Research Library. The first is to search using the fields below. The second is to browse by category lower down the page.
For help using the Research Library, click here.
Please also see our Frequently asked questions page.
The publications in this research library may contain references to sensitive issues and cause distress. If you or someone you are with is in immediate danger, please call 000. If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14. For other information on support for carers please visit our support for carers page.
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Looking for international carer research?
Visit the Carer Research and Knowledge Exchange Network (CAREN) to discover global carer- related research.
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Add your research
Is something important missing from the Research Library? Share your research or suggest research by another author using our submission form. For more information about how to create an account click here and for more information about how to upload a publication to the research library click here.
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Use the ‘filter my results’ function to further refine your search results. If you would like to start a new search, please use the ‘search for a resource’ function above
Your search has returned 7 results
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2.1.2019
An economic evaluation of a telephone outcall intervention for informal carers of cancer patients in Australia
Scott Richards-Jones, Cathrine Mihalopoulos, Leila Heckel, Kate M. Gunn, Marcus Tan, Patricia M. Livingston
This study looks at the economic efficacy of proactive telephone outcall intervention as a method of improving health outcomes for carers of cancer patients.
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4.2.2019
A systematic review of cancer caregiver interventions
Anna Ugalde, Cadeyrn J. Gaskin, Nicole M. Rankin, Penelope Schofield, Anna Boltong, Sanchia Aranda, Suzanne Chambers, Meinir Krishnasamy, Patricia M. Livingston
This article examined the potential for cancer caregiver interventions to be implemented in practice, revealing that there is much potential for future implementation of cancer caregiver interventions.
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25.7.2020
Measuring carer outcomes in an economic evaluation
Lidia Engel, Stacey Rand, Renske Hoefman, Jessica Bucholc, Cathrine Mihalopoulos, Anne Muldowney, Nikki McCaffrey, Anna Ugalde
This study investigated the overlapping or complementary aspects of carer-related economic evaluation measures including the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL).
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1.11.2020
Head-to-head comparison of the psychometric properties of 3 carer-related preference-based instruments
Nikki McCaffrey, Jessica Bucholc, Stacey Rand, Renske Hoefman, Anna Ugalde, Anne Muldowney, Cathrine Mihalopoulos, Lidia Engel
This study investigated the measurement properties of preference-based instruments that aim to assess the impact of providing informal care on a carers social life and their caring experience.
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11.7.2019
Understanding rural caregivers’ experiences of cancer care when accessing metropolitan cancer services
Anna Ugalde, Sarah-May Blaschke, Anna Boltong, Penelope Schofield, Sanchia Aranda, Jo Phipps-Nelson, Suzanne K. Chambers, Meinir Krishnasamy, Patricia M. Livingston
This study explored the experiences of carers of people with cancer who reside in rural Australia. Specifically, this study explored this cohort's experience in accessing metropolitan cancer health services.
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13.2.2019
Identifying priorities for cancer caregiver interventions
Sarah-May Blaschke, Sylvie Lambert, Patricia M. Livingston, Sanchia Aranda, Anna Boltong, Penelope Schofield, Suzanne K. Chambers, Meinir Krishnasamy, Anna Ugalde
This study investigated the best ways in which caregivers for people with cancer can be supported.
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9.9.2021
Choosing and managing aged care services from afar
Kate M. Gunn, Julie Luker, Rama Ramanathan, Xiomara Skrabal Ross, Amanda Hutchinson, Elisabeth Huynh, Ian Olver
This research aims to identify the factors that influence caregivers' decisions about the aged care providers they select for their elder relatives when caring from a distance and what they value once they have engaged a service.